Who We Support
Carers MK recognises that there are different types of caring roles and that the support needs to be tailored to the specific caring roles.
An adult carer is someone aged 18+ looking after a family member, friend or neighbour who is disabled or ill, has poor mental health, is frail or has an addiction. You may or may not be in receipt of Carer’s Allowance. Your caring role may be for a couple of hours a week or 24/7. Your caring role may involve a variety of tasks including helping with personal care, household tasks, managing finances or medication, arranging appointments or providing emotional support. Alternatively, your caring role may involve providing support in person or from a distance, for example, over the phone.
A parent carer is someone over the age of 18 who is looking after a child or young person with an illness, disability, or additional need, for whom they have parental responsibility.
You may also find this useful if you are a grandparent, other relative or family friend looking after a child with an illness, disability or additional need for whom you don’t have parental responsibility.
We have collated some links to organisations that we hope you will find helpful. Some are Milton Keynes-based, and some are national organisations. This is not an exhaustive list, so if there are other resources that you feel would be useful to share, please do let us know.
Milton Keynes Support
- ASD Support for Milton Keynes Parents Facebook group
- Carers MK’s Young Adult Carers service
- Carers MK’s Young Carers service
- Children with Disabilities Team – 01908 253617 (9.30am – 1pm Monday to Friday) or email
- Milton Keynes Centre for Integrated Living
- Milton Keynes SEND Information, Advice & Support Service provide impartial advice and have several resources on their website. Advice line 01908 254518 or email
- Milton Keynes SEND Local Offer contains information about the Education Health and Care Plan process, local services and organisations
- MK Council SEND Support – SEND Support Line 01908 657825 or email
- National Autistic Society Milton Keynes Branch
- Northants and Bucks Dyslexia Association
- Parent and Carers Alliance MK (PACA MK) Also check out PACA MK’s useful links
- SEND Local Offer Short Breaks
- SEND Parent Programmes, Local Support and Information
- Transition – moving from Children’s to Adult’s support services
- Xtra Special Families offer support to families by providing fun activities designed to develop and improve life skills of children in MK living with disability or additional needs
National Support
- Action for Children
- Autism Support: Parent & Carer (national group)
- Carer’s Allowance
- Contact – the charity for families with disabled children
- Disability Living Allowance (DLA) for Children
- Family Fund
- Fledglings – Clothing, Toys and Sensory Products, Supporting Children and Adults with Additional Needs
- Independent Provider of Special Education Advice (IPSEA)
- National Attention Deficit Disorder Information and Support Service (ADDISS)
- Neurodiverse Self Advocacy
- Personal Independence Payment (PIP)
- Sibs – for brothers and sisters of disabled children and adults
- SOS!SEN – supporting children and young people with special educational needs and disabilities
- The Challenging Behaviour Foundation
- Young Minds
Please note that Carers MK doesn’t accept responsibility for the content of any external organisations.
A young person aged 16-25, caring for a family member, friend or neighbour who is disabled or ill, has poor mental health, is frail or has an addiction.
Find out how we support young adult carers.
A child or young person aged 8-19 caring for a family member who has a physical or mental illness, a disability, or a drug or alcohol related problem. The person being cared for may be a parent, sibling or other relative living in the same household.
Find out how we support young carers.
A sandwich carer is someone who cares for both sick, disabled or older relatives and dependent children or children with disabilities.
This type of carer is on the increase due to older people living longer. (27% of carers according to the State of Care Survey 2019)
Frequently, many people take on new caring responsibilities that may impact on work. Currently there are over three million working carers in the UK. It may feel as if you are juggling two jobs when you are holding down a paid job and caring for someone but work can be important for your well-being, income and for maintaining social contacts.
There are things you can do to cope with the pressures of work and caring. As a working carer you may need support at work and perhaps different levels of support at different time. This may include access to a telephone to check on the person you care for, or taking leave to help out when someone is being discharged from hospital.
Carers have some statutory rights and an increasing number of employers are realising the benefits of supporting their staff who are carers. Most working carers have the following rights:
- The right to request flexible working
- The right to time off in emergencies
- The right to parental leave if you have a child
- The right not to be discriminated against or harassed under the Equality Act
- Your employment status can affect your entitlement to these rights. If, for example, you are self-employed, on a short-term contract or employed through an agency you may not be covered by these rights. If this applies to you it is important to seek advice.
In addition to your statutory rights, your employer may offer additional support. This will be outlined in your contract and the organisation’s policies (look in your staff handbook if you have one). For example, you may be able to use leave arrangements, paid or unpaid, at the discretion of your employer to cover intensive periods of care.
If you are thinking of giving up work, a career break or sabbatical allows you to keep your options open, ensuring you can go back, and keeping you in touch with the world of work. Some employers offer paid and/or unpaid career breaks, often after a specified period of service with them, so check your organisation’s policies.
Carers MK can provide a letter detailing that you are registered with Carers MK, in support of your caring role.
Additional information for working carers can be found on the Carers UK website.
Carers MK is committed to supporting carers from all diverse communities. We know that although carers often face similar issues, some carers may experience additional challenges due to cultural or religious differences, difficulties with language or discrimination due to sexual orientation or gender identity.
A former carer is someone whose caring role has come to an end. Former carers may still need some onward support after their caring role has ended.
Find out how we support former carers.
Are you caring for someone?
Do you look after someone who cannot manage without you because they are ill, frail or have a disability?
If so, you are a carer and Carers MK can help you.